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January 2011



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by BK Davis

In 2009, the Minnesota legislature made significant changes to the Personal Care Assistance (PCA) program in order to save money. An estimated 3000 children and adults who use the program will no longer be eligible for the program, come July 2011. A significant percentage of these 3000 people are people of color.

The PCA program aids people with disabilities or chronic illnesses who need help with dressing, grooming, bathing, positioning, transferring, mobility, eating or toileting. These are called “activities of daily living.” The program also aids those who display difficult behaviors such as being physical aggression towards self or others, or destroying property that requires an immediate response of another person. These are called “Level 1 behaviors.”

There are four groups of people who will lose their PCA services. Nearly 1000 people have already lost their services because they do not need help with any activities of daily living nor do they have Level 1 behaviors. Come July 2011, there are three groups of people who will lose their services:
• People who only have serious behavior issues, a “Level 1” behavior
• People who need help with only one activity of daily living and do not have a Level 1 behavior
• People who need help with only one activity of daily living and have a Level 1 behavior

Of those who only have a Level 1 behavior, 77 percent are under the age of 22 and 41 percent are people of color. These are largely children and adolescents who have ADHD, autism or a general emotional disturbance.

For those who only have only one activity of daily living that they need help with, 66 percent are people of color and 61 percent are female. Most are between the ages of 23 to 64 and many have immune disorders, arthritis, lupus and diabetes.

For those who have a Level 1 behavior and need help with one activity of daily living, 73 percent are under the age of 22 and 47 percent are people of color with 14 percent receiving adoption assistance. These are children who primarily have ADD, mood disorders, autism, or a developmental delay.

Based on these figures, representatives of NAMI Minnesota say they are very concerned that these cuts will disproportionately impact children of color and their families.

NAMI Minnesota representatives say the organization is seeking the public’s help and input as these drastic changes to the PCA program happen. Reassessments are now taking place and so families should learn soon if their child or family member will no longer be eligible for PCA services.

Additionally, the legislature also directed the Minnesota Department of Human Services to develop alternative services for those who will lose their PCA services. The department is currently meeting with organizations about what those alternatives could look like.

NAMI Minnesota representatives say they want to make sure that the public’s voice is heard and that its ideas and needs are received by the state.

“We want to know if you will be losing your services,” said a NAMI representative, “and the impact that this will have on your family. We also want to know how you have used PCA services and whether you have ideas about alternatives that would work as well or better for your needs.”

As part of their overall mission, NAMI Minnesota is sponsoring a walk to raise awareness and promote acceptance of mental illnesses. NAMIWalks 2010 will be held on September 25th at Minnehaha Park in Minneapolis. For more information, go to www.namihelps.org.

Source:  http://www.onenationnews.com/fullstory.asp?newsid=9706

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