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17.12.15. The National Autistic Society is concerned about the impact the sudden closure of St Christopher’s School in Bristol will have on its students.
Dec
24
Dear Readers,
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Wishing you a very Merry Christmas & a very happy, healthy 2016!
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Warmest Wishes,
Julie & Co
xx
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Veterans who suffer from post-traumatic stress disorder (PTSD) have access to the Veterans Health Administration and Defense Department, which acts as a center for research, data, and services for combat-related PTSD treatment.
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But for the millions of non-veterans suffering from PTSD, treatment resources are far less comprehensive and accessible, according to a new study published in the Harvard Review of Psychiatry.
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“For the other people affected by PTSD — victims of sexual assault, child abuse, and natural disasters — there really isn’t an organized body of research that generates guidance for how they and their caregivers should deal with their PTSD,†said lead author Dr. Judith Bentkover, professor in the Brown University School of Public Health.
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“The best PTSD treatment model we have can be found within the VA,†Bentkover said. “Kids have PTSD. Women have PTSD. It’s not just a disease of veterans, although they are a very important and poignant cohort of people who have it. Sexual assault victims, abused children, survivors of natural disasters do not necessarily have a VA to go to. What do they do?â€
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Read in Full:
http://psychcentral.com/news/2015/12/21/resources-found-lacking-for-non-veterans-with-ptsd/96523.html?li_source=LI&li_medium=most-popular
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Initial steps have been taken to determine if 10,000 lux light therapy can be used as a legitimate way to treat depression – not seasonal depression – but full blown major depressive disorder.
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The results of this JAMA study were provocative, to say the least.
•Light therapy beat Prozac.
• Light therapy beat sham light therapy (placebo).
• Prozac did NOT beat placebo.
• A combination of Prozac and light therapy beat sham light therapy and sham Prozac (placebo combination) as well as light therapy alone.
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Often used to help with seasonal affective disorder, ultraviolet light is known to help with the production of serotonin, noradrenalin and dopamine.
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Read in Full:
http://blogs.psychcentral.com/nlp/2015/12/light-therapy-beats-ssri-and-placebo-for-depression-in-jama-study/
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17.12.15. The National Autistic Society is concerned about the impact the sudden closure of St Christopher’s School in Bristol will have on its students.
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Source:
http://www.autism.org.uk/get-involved/media-centre/news/st-christophers.aspx
 Hi,  My name is Julia Bascom, and I serve as ASAN’s Deputy Executive Director. I want to tell you about my favorite part of ASAN’s work.  Last June, 17 Autistic college students descended on Washington, D.C. For many, this was their first time in an Autistic space; by the end of the week, they were marching confidently into Congressional offices and advocating with poise and skill for our community. Those 17 students are back on their campuses now, working hard to bring systems change to their colleges, local communities, and states.  We’ve held ACI for 4 years now, and in that time we’ve been able to train 64 Autistic self-advocates in grassroots organizing, disability and Autistic history, and policy advocacy.  We do this because ASAN’s motto is that old disability rights slogan: nothing about us, without us! It is not enough for Autistic people to have a place at the table; we demand a place of leadership. We’ve been hard at work creating a pipeline of self-advocate leaders who can represent our community with confidence and skill.  We don’t stop at ACI, either. We’re building a network, just like our name says: a deeply connected and highly skilled group of advocates from all across the country who believe that disabled people are people, with rights to be advanced and lives to be valued. You can learn more by taking a look at our annual report, but the takeaway is: we want to build a world where every autistic person can live a life assured of our rights, in our own communities, safe from harm and confident in our future. And we can’t do it without you.  It’s the end of the year for us, and traditionally now is the time when organizations like us ask that, if you like what we’ve been up to, you send a donation our way. Because I have to tell you, after all we’ve done… we’re just getting started. In order to keep going, we need your help. Donate now, and help us make sure that whenever our community is being discussed, we are leading the conversation.  I’ll see you next year,  Julia Bascom |
Dear Friends,
 The Autistic Self Advocacy Network is a small organization with a large mission: empowering Autistic people throughout the country and helping our community stand up to those who want to silence us.  That’s a hard task, but it has to be done. Without a strong, Autistic-led voice defending our rights, many of the advances the Autistic community has made over the last several years wouldn’t be happening. This has been an important year for ASAN’s work.  When an Autistic teenager was kicked off a flight due to her disability, ASAN led the response, securing new guidance from the Department of Transportation protecting the rights of Autistic airline passengers.  When people with disabilities are segregated in sheltered workshops and kept out of the workforce, ASAN fights back. We’ve successfully worked with our legislative champions to introduce bi-partisan legislation, the Transition to Independence Act, which will reward states for increasing the number of people with disabilities in integrated workforce.  When people with intellectual disabilities face discrimination in allocation of scarce medical resources, ASAN is there, working to secure equal rights. This year, we passed a new law in Maryland prohibiting discrimination against people with disabilities in accessing organ transplants.   We’re not just responding to crises as they happen. We are working pro-actively to set the stage for long term change for Autistic people and our families. This year, with the help of our generous supporters, we continue to push forward the disability rights movement.  We have worked with state advocates to promote new laws to keep people with disabilities out of guardianship and help create structures for decision-making support that don’t take away the legal rights of those who need assistance.  We have continued our leadership development programming, supporting the training of a new generation of Autistic and disabled leaders on college campuses and local self-advocacy groups.  We have launched new resources on improving housing, education and healthcare opportunities for Autistic children and adults, and worked with local advocates to make them available across the country.   Thank you, and as always, Nothing About Us, Without Us!  Warm regards, |
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It’s the last thing you want to do when you’re anxious — that is, to be kind to yourself. After all, you’re anxious for no good reason. Again. And this is the third time today that you’ve felt your stomach take a nosedive and your entire body shake.
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Having anxiety is incredibly frustrating. Our first impulse might be to lash out at ourselves. But what’s more helpful is to be kind, instead — even though it might feel unnatural at first. Because lashing out only boosts our anxiety, worsening our symptoms (not to mention it also sinks our mood). Self-compassion, on the other hand, calms us. It means soothing ourselves when we need it most.
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“Kindness comes in infinite forms,†said Lea Seigen Shinraku, MFT, a therapist in private practice in San Francisco. Sometimes, kindness is taking a walk or talking to a friend or watching your favorite TV show to distract yourself, she said.
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Read in Full:
http://psychcentral.com/blog/archives/2015/12/05/4-ways-to-be-kind-to-yourself-when-youre-anxious/
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When the scattered afternoon sunlight seeped its way into a restaurant in the heart of Mackay, Nekea Blagoev’s creativity, widely splashed across the walls, came to light.
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According to Nekea, the first milestone in her life did not involve walking or talking.
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Instead, her earliest memories involve painting and drawing.
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“Mum was always constantly painting the walls because I was always drawing on them,” Nekea said.
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“It was more of a hobby when I was a kid, and it just developed into something bigger than I could have ever dreamed of,” she said.
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It was not until five years ago that Nekea decided to take her creative side seriously.
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She has since gone on to showcase her artwork around the world, and one of her artwork designs was recently used on a stamp in the United States for Autism Awareness Month.
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Most recently her accomplishments have led to the Mackay artist being named the 2015 Individual Achievement winner at the Autism Queensland Creative Futures Recognition Awards.
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“[I was given the award] for my achievements and being an inspiration and role model to my fellow community members, and my artwork on top of that as well just goes hand and hand with each other,” she said.
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Read in Full:
http://www.abc.net.au/news/2015-12-18/mackay-artist-aspergers-wins-award/7041304
Carol Sonnenblick, Ed.D.
Board of Directors
Freedom Fom Fear
Chubby Santa’s, twinkling lights, parties, the aroma of pies and cookies baking in the kitchen, champagne bubbles, family feasts and gifts piled high greet each year’s holiday season. Holidays are happy times, right? Not necessarily. The advent of the holiday season is not always a time of joy. It is a time when we mourn those whose presence is missed. It is a time when frenzied activity adds to the burden of life’s already hectic schedules. It is a time of excess—spending too much, eating too much and drinking too much. How can we put in the obligatory time with family which may prove toxic as old habits and unresolved issues resurface?  How can we enjoy the holiday season when coping with our usual stressors requires us to use all of our inner resources? Here are some.
Put the holiday into perspective—the excitement, the scenery, the parties, friends and family. Recognize that changes in routine can be stressful but that’s just part of the season—enjoy and happy holidays.
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“Remember that our expectations will create our reactions, and expectations are often too idealistic if guided by the hallmark holiday image.â€Â  -Mark Sisti, Ph.D
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“Have the freedom to change traditions, based on what works and what no longer works.â€-Constance Salhany, Ph.D.
Source:Â http://www.freedomfromfear.org/viewtopic.asp?topic_id=246
Christmas and ASD
Christmas can be an exciting and fun time, but it can also be stressful.
People with an autistic spectrum disorder (ASD) may be confused or
distressed by all the new activity within the household at Christmas and
this can be upsetting for the rest of the family. Hopefully this information
sheet will provide some tips which might help. The word ‘child’ will be used throughout however some of the tips will be useful for adults too.
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Preparation
As Christmas approaches, you may want to highlight this holiday period on the household’s or child’s calendar. We would suggest that you check when the school starts work about Christmas, and perhaps you could introduce the idea at a similar time. This will help to ensure consistency. However, if this time frame does not leave enough preparation time for your child, then you should adjust it as appropriate.
You may only want to emphasise Christmas Day on the calendar. Or you might want to indicate when the school term ends and starts again, to show that the child will be at home during this holiday. You could name this period on the calendar: ‘Christmas Time’ might be appropriate. Highlighting this on the calendar will help your child to prepare for the time spent away from school, and therefore the change in routine. You can start talking to your child about ‘Christmas Time’ and what this means. This will differ for each family. You could produce a booklet on Christmas with pictures of relevant items, for example Christmas trees, the sorts of decorations you use and the food you might eat. However, remember that if your child is very literal you will need to be careful as they may become anxious if your Christmas does not appear exactly as the pictures.
On your calendar you can mark the days that you will buy and put up the Christmas tree and decorations, as well as any other changes which will occur. Do not forget to include the day when relatives or friends will arrive to stay. Although a lot can change during this time, it is important to continue your child’s routine to some extent. If you use visual timetables with your child (see our ‘Visual supports’ information sheet, available free from the Autism Helpline), continue to use them to show what they will be doing during this period.
You should include your child with an ASD in the Christmas process. You may want to take them shopping for the tree and decorations, or show them where they are kept in the house before you bring them out for the holiday. This will help your child to become familiar with these items, even if they saw them the year before. Your child should also be involved in putting up the decorations, even if they are just in the room when it occurs. This will hopefully prevent any negative reactions to these new items being placed in a familiar environment.
If your child does want to be included then you may like to give them a particular job to do which they can focus on. This may help them to feel included and less anxious about the changes around them. You may even want to decorate the house over a few days if your child finds change particularly difficult. For example, you could place the tree in position, leave it for a few days and then start to decorate it, adding any house decorations later on.
The Autism Helpline is often asked about suitable toys or gifts for a child with an ASD. These will vary from one person to another. However we would suggest that for some children with an ASD having a huge number of presents from friends and family might be too overwhelming. Perhaps a set amount could be given, maybe one from mum and dad and one from grandparents. Any other family members who would like to buy a gift could perhaps put the money in a trust fund to be used for the child at other times. Alternatively, perhaps giving the child one gift a day might help to reduce any anxiety.
The Autism Helpline is often asked what toys might be suitable for children with an ASD. Therefore we have compiled a list (in no particular order):
1) Trampolines
These come in lots of different sizes, but make sure it’s strong. They are good for using up energy.
2) Sensory toys
There are many types of these, some examples are:
3) Board games
4) Music
5) Bikes/tricycles
6) Water toys
7) Books
Read-along ones, perhaps accompanied by a tape of the story; for example The Hungry Caterpillar.
These are just a few examples, there are many more. Please remember that every child is different so not every child will like the same toys.
The following website also has some advice about choosing toys for children with autism: www.insidethebubble.co.uk/toys.php
If your child is becoming obsessive about Christmas, you will need to try and set boundaries around this obsession. Please see the Obsessions, repetitive behaviours and routines information sheet for further information.
If you would like any of the information sheets mentioned in this article (Visual supports; Obsessions, repetitive behaviours and routines) please contact the Autism Helpline 0845 070 4004.
Useful contacts
Garden Adventure
Trampolines of all sizes and shapes
Tel: 01342 300146
Email: info@gardenadventure.co.uk
Website: www.gardenadventure.co.uk/Trampoline/index.php
Fledglings
A charity which helps parents and carers of a child with special needs of any kind to find simple, affordable solutions to practical problems.
Sells toys, trikes and other products for children with disabilities
Tel: 0845 458 1124
Email: enquiries@fledglings.org.uk
Website: www.fledglings.org.uk
KidsOut
National charity providing fun to children with special needs, including play equipment and grants
Tel: 01525 385 232
Email: kidsout@kidsout.org.uk
Website: www.kidsout.org.uk
Special Needs Kids
Some ideas for special needs toys
Email: enquiries@special-needs-kids.co.uk
Website: www.special-needs-kids.co.uk/toys-index.htm
LDAlearning
Resource catalogue
Tel: 0845 120 4776
Website: www.ldalearning.com
National Association of Toy and Leisure Libraries
Tel London office: 020 7255 4600
Tel Scotland office: 0131 664 2746
Tel Wales office: 02920 566 333
Website: www.natll.org.uk
Rompathe 6th sense
Resource catalogue
Tel: 01246 211777
Email: sales@rompa.com
Website: www.rompa.com
SenseToys Ltd
Tel: 0845 257 0849
Email: info@sensetoys.com
Website: www.sensetoys.com
SpaceKraft Limited
Resource catalogue
Tel: 01274 581 007
Website: www.spacekraft.co.uk
TFH UK
Resource catalogue
Tel: 01299 827 820
Email: enquiry form on the website
Website: http://www.specialneedstoys.com/UK/
Winslow Resources
Resource catalogue
Tel: 0845 230 2777
Email: sales@winslow-cat.com
Website: www.winslow-cat.com
Please note the above organisations are not connected with The National Autistic Society in any way; we cannot recommend any of the above organisations.
References/recommended reading
Newson, J. and E. (1982). Top twenty toys for handicapped children in Living and working with autism. Section 5. The National Autistic Society.
This article is a little old-fashioned in its use of language. However many of their recommendations will still be applicable today. Copies are available from the Autism Helpline on 0845 070 4004.
If you require further information about autism and related issues, please contact the NAS Autism Helpline, open Monday-Friday, 10am-4pm:
Tel: 0845 070 4004
Email: autismhelpline@nas.org.uk
Source: Â Â http://www.autismjersey.org/
Further Articles
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NAS:Â Ten Ideas For A Happy Christmas
https://www.aspie-editorial.com/2011/01/09/nas-ten-ideas-for-a-happy-christmas/
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Grieving: 7 Tips To Get You Through The Holidays
https://www.aspie-editorial.com/2011/01/09/grieving-7-tips-to-get-you-through-the-holidays/
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Holiday Pieces: Getting Through The Holidays, Family Ties, Doing Right For Others & Holiday Blues:
https://www.aspie-editorial.com/2011/01/22/holiday-pieces-getting-through-the-holidays-family-ties-doing-right-for-others-holiday-blues/
Holiday Shopping Tips, Christmas Stress Management, Why Holidays Don’t Have To Be ‘Happy’:
https://www.aspie-editorial.com/2011/01/22/holiday-shopping-tips-christmas-stress-management-why-holidays-dont-have-to-be-happy/
NAS: ‘Tis the Season to be Jolly:
https://www.aspie-editorial.com/2011/01/22/nas-tis-the-season-to-be-jolly/
Introverts: Party Survival Tactics, The Party Predicament, Introverts & Health:
https://www.aspie-editorial.com/2011/01/22/introverts-party-survival-tactics-the-party-predicament-introverts-health/
LEGO NAS Charity Calendar 2010 & New LEGO Games:
https://www.aspie-editorial.com/2011/01/22/lego-nas-charity-calendar-2010-new-lego-games/
Sensory Toy Warehouse(Please Note Comment For Name/Site Change):
https://www.aspie-editorial.com/2011/01/22/the-novelty-warehouse-sensory-toy-shop/
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Introvert’s Guide to Holiday Merriment:
https://www.aspie-editorial.com/2011/01/22/introverts-guide-to-holiday-merriment/
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Managing Holiday Stress, Alone For The Holidays, Families In Recovery: