

First Published Tuesday, 3 March 2009
By Andy Walker
AN autistic man from the region impressed expert judge and international photographer Rankin to win the photography category in a national creativity competition.
Andrew Hewitt, from Northallerton, North Yorkshire, had his work showcased after winning the competition, launched by the National Autistic Society (NAS).
It was displayed along with the efforts of other winners in an exhibition, at the Gallerina, in London’s Pall Mall, last week.
The unique collection of works, also judged by adults with autism alongside experts in each category including political cartoonist Gerald Scarfe and poets Wendy Cope and Lachlan MacKinnon, offered insights into what it is like to live with the much misunderstood condition.
Mr Hewitt’s winning photograph is of a lady he met on the way back from Northallerton fair who had a giant stuffed tiger in her pull along shopping trolley.
The 35-year-old said: “I am really happy that I have won, as my photograph reflects my sense of humour.
“It is called Strange Encounters and reflects the strangeness of life in general – not just because I might see things in a different way to other people.â€
The exhibition forms part of the NAS I Exist campaign, which found that many adults with autism are prevented from reaching their full potential due to a lack of support.
The works are a real testament to the contribution adults with autism have to give. Many are powerfully expressed and consider how a condition which affects the way people communicate with and relate to the world can provide an interesting and unusual perspective.
Mark Lever, NAS chief executive, said: “Congratulations to Andrew.
“There are more than 500,000 people with autism in the UK – that is one in 100 – and many adults with autism tell us how important art and creativity are in their lives.
“We have been overwhelmed by the quality of Andrew’s work and hope it will bring home to Government, local authorities and the general public just some of the realities faced by people with autism across the UK today.â€
An online gallery of the pieces carried in the exhibition is at think-differently.org.uk
Source: Â http://www.darlingtonandstocktontimes.co.uk/news/4163593.Northallerton_man_wins_photography_contest/
First Published Tuesday, 3 March 2009

The Government wants to improve the employment rate of people with autism. This target is in Public Service Agreement 16. Public Service Agreements are targets the Government sets when it decides how much money it will spend. Public Service Agreement 16 was set in 2007 when the Government decided how much money to spend from 2008 to 2011.
The Government is now writing a plan to help more people with autism get jobs. The plan will also help people with a learning disability get jobs.
If you want to tell the Government what you think would help people with autism to get jobs, answer the five questions below and email your answers to LDEmploymentStrategy@dh.gsi.gov.uk by 11 March 2009.
The National Autistic Society would also like to read your answers to the questions. If you are happy for us to read your answers please also email them to policy@nas.org.uk
Here are the questions that the Government would like you to answer.
- Can you tell us about any projects or other things that have helped you get a job?
- Not many people with autism have a job. Why do you think this is?
- How can we help more people with autism believe that getting a job is a good idea?
- What changes need to be made that would help more people with autism get jobs?
- Is there anything else you would like to tell us about getting more people with autism jobs?
When you have answered the five questions, write your name and your contact details in case the Government wants to ask you some more questions about what you have said.
The Government will need to know:
- *your name
- *your organisation (if applicable)
- *your email address or phone number.
By answering the five questions, you are saying that the Government can use your comments for their work. If you tell the Government about things that have happened to people you know, you should not use their real names. If you tell the Government about things that have happened to you, the Government will only use your name if you say they can.
Related resources
Relevant areas/articles elsewhere on this website Welcome to Prospects
Source: Â http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=1522&a=18860
First Published Tuesday, 3 March 2009

ALL parents believe their child is remarkable but there are few words to describe little Rosie Homersham.
At eight years old Rosie, from Coleshill, has launched her first art exhibition in aid of the National Autistic Society.
Rosie was diagnosed with Asperger’s Syndrome as a toddler and uses her artwork to communicate her thoughts and feelings.
“Most people see her as eccentric but she loves to draw and is finding something new to obsess about all the time,†said mum Patricia, 34.
“Asperger’s isn’t a condition that many people know about so we hope through Rosie’s exhibition that people see a bit of her character and learn a little more about the condition.â€
Asperger’s syndrome is named after Austrian paediatrician Hans Asperger who, in 1944, described children in his practice who lacked non verbal communication skills, demonstrated limited empathy with their peers, and were physically clumsy.
But despite Rosie’s social difficulties there are subjects she thrives in at Southerop School near Coleshill.
“She does so well as school and although her social interaction isn’t the same as other children she has lots of little friends and gets on well with her teachers,†said Patricia.
Rosie and her work
The youngster’s favourite artistic muse is Elvis and the family’s home is littered with hundreds of portraits of The King.
“He’s my favourite because he’s really good looking,†said Rosie.
“But I think I’ll stop drawing when I am 19 because I’ll have loads of other things to do.â€
As well as Elvis, Rosie’s picture passion has jumped to high-heeled shoes, goldfish and vegetables.
“When she finds a subject she likes she’s totally fixated on it,†said dad Henry, 34.
“She took 146 photos of vegetables in a catalogue and put them with her drawings. That’s her current obsession but before that it was heels and to start off with baths.
“She used to draw bathroom plans with all the pipework and everything. It was astonishing.â€
But for all of Rosie’s adorable traits there are some who have found her condition hard to swallow.
“Some people are cruel and hurtful in the past,†said Patricia. “Because Rosie’s condition doesn’t manifest itself physically they find her behaviour difficult to understand sometimes.
“Here in the village though, she’s just an eccentric and people haven’t batted an eyelid and that’s all we’ve wanted for her.â€
To donate to the National Autistic Society, visit Rosie’s exhibition at Coleshill Village Shop and Tearooms or log on to www.nas.org.uk. The exhibition is running from 10am until further notice.
Source: Â http://www.swindonadvertiser.co.uk/news/4164020.Rosie_helps_autistic_charity/
First Published Wednesday, 4 March 2009

Hello,
Recently, the National Institute of Mental Health released several Request
for Applications (RFAs) on services-research topics relevant to autistic
people and our families as part of a broader effort to identify NIMH’s
priority areas
<http://www.nimh.nih.gov/recovery/recovery-act-nih-challenge-grants-nimh-areas.shtml>for
use of stimulus funds. The RFAs utilize funds specifically allocated under
the recently passed American Recovery and Reinvestment Act (aka: the
Stimulus bill). As you may be aware, the Autistic Self Advocacy Network and
the broader autistic and disability communities have been lobbying for
increased representation of services-research and bioethics issues in the
NIH research agenda for some time. We’re pleased to share with you these
RFAs, which hopefully will yield research that will have a positive impact
for our community.
04-MH-104Â Â Â Access to services by individuals with autism and their
families. Engage well-characterized subjects and families in existing autism
research activities in preliminary studies exploring variations in access to
and use of services, identification of targets for services interventions,
and exploration of how variations in service use affect family functioning
in diverse populations. Contact: Denise M. Juliano-Bult, M.S.W.
301-443-3364, djuliano@mail.nih.gov
02-OD(OSP)-104*Â Â Â Â Â Â Â Ethical Issues in the Translation of Genetic
Knowledge to Clinical Practice. Genetics and genomics have great promise for
the development of personalized medicine, yet the ethical, legal and social
implications of both the research and application of genetic and genomic
knowledge and technology are far reaching. Studies are needed to better
understand the factors that influence the translation of genetic information
to improved human health and the associated ethical issues. Examples of
studies include those to address ethical issues related to broad sharing and
use of new genetic information and technologies for research to improve
human health, human subjects protection in genetic and genomic research, the
identifiability of genetic/genomic information and how our understanding of
identifiability is evolving, return of research results and incidental
findings to subjects, alternative models of informed consent for broad data
sharing for research, and the impact of intellectual property (IP) issues on
development of new technologies. OD(OSP) Contact: Abigail Rives,
301-594-1976, rivesa@od.nih.gov; NIMH Contact: Jean Noronha, Ph.D.,
301-443-3367, jnoronha@mail.nih.gov
05-MH-101*Â Â Â Leveraging Existing Healthcare Networks for Comparative
Effectiveness Research on Mental Disorders and Autism. Existing large
integrated healthcare networks are needed to more efficiently conduct
large-scale effectiveness trials in “real-world†patient settings. The NIMH
solicits individual or collaborative, linked grant applications from
researchers with experience conducting studies within large integrated
healthcare delivery systems to develop and test infrastructure to
efficiently conduct trials on the effectiveness of treatment, preventive and
services interventions to improve care for people with mental disorders and
autism. Applicants can propose studies to 1) demonstrate the ability to
identify, recruit and enroll large patient populations into clinical trials,
2) harmonize electronic medical record data across multiple integrated
systems for research use, 3) pool data for common analyses, and 4) build
capacity for the collection and storage of biologic material. Contact: David
Chambers, D.Phil., 301-443-3747, dchamber@mail.nih.gov
05-MH-103*Â Â Â Collaboration with AHRQ Comparative Effectiveness Research
Program
In FY09 and FY10 the Agency for Health Research and Quality (AHRQ) plans to
support research grants (PA-09-070) on comparative effectiveness of clinical
treatments and services as authorized in the Medicare Prescription Drug,
Improvement, and Modernization Act (MMA) Section 1013. MMA section 1013
mandates two mental health categories: Depression and other mental health
disorders; and Developmental delays, attention deficit hyperactivity
disorder and autism. NIMH is interested in funding ancillary studies
including but not limited to: 1) studies on the comparative effectiveness of
important new or existing technologies; and 2) assessment of the comparative
effectiveness of treatments that are commonly administered to children but
have been evaluated for safety and effectiveness in adult populations. Two
year studies will contribute to successfully implement the mental disorders
components of MMA Section 1013 by utilizing AHRQ networks ( e.g. EPCs,
DEcIDE, CERTs, PBRN, ACTION, etc) to generate information for health care
decision-making. Contact: Agnes Rupp, Ph.D., 301-443-3364,
arupp@mail.nih.gov
04-MH-105Â Â Â Developing interventions and service delivery models for the
transition to adulthood. Conduct pilot studies to develop and test
developmentally appropriate, evidence-based prevention interventions and
service delivery models for youth with who are at high risk for, or
experiencing severe mental illnesses who are transitioning to adulthood.
Studies would propose strategies to address discontinuities in service
systems and health care financing. Contact: Joel Sherrill, 301-443-2477,
jsherril@mail.nih.gov
Furthermore, NIMH also released the funding of the Inter-Agency Autism
Coordinating Committee (IACC) Strategic Plan as an RFA. ASAN has been active
in lobbying for the inclusion of quality of life oriented research in the
IACC’s priorities since this IACC’s inception in 2007. While having both
positive and negative components, the IACC Strategic Plan includes services-
and quality of life-research components, including research on meeting the
needs of autistic adults. It can be found below.
04-MH-101*Â Â Â Autism: Addressing the challenge. Target research gap areas
identified by the Inter-Agency Autism Coordinating Committee (IACC)
Strategic Plan for Autism Spectrum Disorder Research, including biomarkers,
novel interventions, and new tools for screening, among other topics.
Contact:Â Ann E. Wagner, Ph.D., 301-443-5944, awagner@mail.nih.gov
We encourage you to transmit this information to your contacts in the
research and scientific communities, encouraging them to apply for funding
for projects that will positively impact the lives of autistic people while
working with the self-advocate community to ensure inclusive and
participatory models of research, as we practice through our partnership
with the Academic Autistic Spectrum Partnership in Research and Education
(AASPIRE) <http://www.aaspireproject.org>. Please feel free to e-mail us at
info@autisticadvocacy.org with questions on ASAN’s research advocacy and how
you can get involved. If you are a researcher, interested in interfacing
with ASAN and our research partner AASPIRE on research priorities, design
and implementation, we encourage you to contact ASAN Board Member and
AASPIRE Project Co-Director Dora Raymaker at dora@aaspireproject.org.
Regards,
Ari Ne’eman
President
The Autistic Self Advocacy Network
1660 L Street, NW, Suite 700
Washington, DCÂ 20036
http://www.autisticadvocacy.org
732.763.5530
First Published Wednesday, 4 March 2009

AUTSCAPEÂ 2009: EFFECTIVEÂ LIVING
Tuesday 18 August – Fri 21 August 2009
London, UK
http://www.autscape .org/
C A L LÂ F O RÂ P R O P O S A L S
Deadline: Friday, 01 May 2009.
Submission form: http://www.autscape .org/proposals/ proposalform
Please distribute freely.
Contents
- – What is Autscape?
- – What we are looking for
- – Theme
- – Audience
- – Examples
- – Non-verbal workshops
- – A few notes of caution
- – What do we expect from you?
- – What can you expect from us?
- – How to submit your proposal
What is Autscape?
Autscape is a conference with a difference. Rather than talking to a
primarily non-autistic audience about autism, this conference is
specifically by and for autistic people. Some of it isn’t even about
autism at all! Non-autistic people are also welcome, but the environment
and content of the event are centred around autistic people’s needs,
interests and sensitivities.
What we are looking for
We are now accepting proposals for seminars and workshops to be
presented at Autscape 2009. Proposals for poster presentations, leisure
group leaders, videos, leaders for structured or semi-structured evening
discussions, and other ideas will be sought in the near future.
Theme
The theme for this year’s Autscape is Effective Living.
Brief theme description: As Autistic people we have a variety of issues
that affect our quality of life, whether difficulties with socialising
or public transport, organisation and procrastination, or sensory
issues. At Autscape 2009 we plan to explore ways of dealing with these
issues to enable us to gain more order and enjoyment in life.
Presentations which conform to the theme will be given priority. For the
full theme description, please visit:
http://www.autscape .org/proposals/ theme
We wish to explore these key concepts of autistic being in many
different fashions. This can be through formal presentations or
workshops, and may be theoretical or practical. Many different types of
input are welcome: traditional lectures, creative expression, physical
activity, interactive workshops and more.
Audience
Although we welcome non-autistic professionals and family members, the
aim of this event is primarily for autistic people, not about us!
Workshops geared towards parents and professionals may be accepted, but
must be positive in their support for autistic people and their right to
be different.
Examples
For some examples of what has been presented at Autscape in the past,
see last year’s presentations at:
http://www.autscape .org/archive/ 2008/presentatio ns
We are also likely to enjoy similar workshops to those that have been
presented at Autreat, in the USA. See: http://www.ani. ac/
Although many of the autistic people who are attracted to an event such
as Autscape are highly verbal, others may have difficulty with an event
so centered around language. However, we want to welcome and fully
include all kinds of autistic people, including less ‘wordy’ ones. We
are also seeking workshops which are not primarily focused on the spoken
word. (Presenters may still use speech; it is just not the main content
of this type of workshop.) Examples: dance, relaxation, music, art,
construction of some kind. These workshops are different from casual
leisure sessions in that they have more structure, preparation (from the
presenter), relevance to autism and the event’s theme, and duration.
A few notes of caution
* Cures:
Workshops about curing or preventing autism are likely not to go over
well at all and are best avoided altogether, unless it is from an
advocacy standpoint.
* Problems:
The problems of non-autistics coping with autistic people could
inadvertently reinforce negative attitudes.
* Personal Experience:
We all have personal experience of autism. If your presentation is
primarily based on your personal experience, think carefully about its
relevance here; the story needs to be one which can help attendees to
find new understanding of their own situation. Please let us know what
you’re hoping those present will gain from your presentation.
* Suitability:
Every workshop, no matter who it is targeted towards, should be suitable
for autistic people to attend without feeling objectified or put down.
What do we expect from you?
* Attendance:
If you submit a proposal, we do expect you to be there! Please be
prepared to attend Autscape and give your presentation on the day and
time scheduled. If you choose not to attend Autscape for the whole 3
days we will do our best to fit the schedule around your needs.
Travel is the responsibility of each individual presenter. We cannot
subsidise travel or off-site expenses for anyone. If your proposal is
accepted, we will send you a formal letter of invitation if this will
help you to secure your own funding.
* Discussion groups:
Presenters may be expected to run an evening or afternoon discussion
group on their topic, for those who would like to explore the issue
further. If you may have problems with this, we will try to find a
volunteer to help you.
* An article:
We would like an article about your presentation for inclusion in a
proceedings booklet to be prepared and printed at a later date. This
booklet will be sold to raise funds for Autscape.
* Presentation materials:
Please send copies of any handouts and computer presentations (e.g.
powerpoint) ahead of time. These will be made available for download by
Autscape participants and printing for those who require it.
* Archive:
We would like to include your presentation summary, biography and any
electronic handouts you provided in our website’s archive area.
* Recording:
Please allow us to video or otherwise record your presentation. These
records may be made available to others by Autscape. If you submit a
proposal we will assume you are happy with these expectations. If you
have any questions or objections, please let us know so we can discuss
it.
What can you expect from us?
* Attendance:
Presenters will be accommodated on-site for the day of their
presentation including the night before or after. Only one place can be
subsidised for each presentation, regardless of the number of
presenters. Unfortunately, due to the funding situation we cannot offer
free attendance at all of Autscape this year.
* Participation:
Whenever you are not presenting you can enjoy the event, including other
workshops and the setting, just as any other participant.
* Involvement:
One thing you can expect by joining us is the opportunity to shape an
emerging self-advocacy event and autistic community. There will be
opportunities at the event to get involved in the future of Autscape.
* Audience:
A rare opportunity to be heard by a significant number of autistic
people. A chance to have some influence and get some feedback from the
people who matter most in the field of autism.
How to submit your proposal
To submit your proposal, please use one of the following:
* online form: http://www.autscape .org/proposals/ proposalform
* e-mail: info@autscape. org <mailto:info@autscape. org>
* or post to: Autscape, 4 Falcon Street, London, E13 8DE, UK
All proposals must be received by 1 May 2009.
Please include the following information.
1. ABOUT YOU
a. Name
b. Country
c. At least one of:
*e-mail address (preferred)
*phone number
*postal address
d. Experience (A summary of your relevant experience, including
any presentations or other education/advocacy activities
elsewhere, and the nature of your interest in autism and/or in
general disability issues.)
2. INFORMATION FOR THE PROGRAMME
a. Your name or alias (for public use)
b. Biography (50-150 words)
c. Presentation title (1-12 words)
d. Summary (100-200 words)
3. ABOUT YOUR PRESENTATION
a. Type of session (choose one)
*Lecture (audience mostly listens)
*Workshop (audience participates verbally)
*Hands-On (audience participate physically)
*Other (please describe)
b. How does your presentation relate to this year’s theme
‘Effective Living’?
c. Please describe your presentation or activity for the
decision makers.
4. Other comments not addressed above
First Published Wednesday, 4 March 2009
![]()
In January 2009, the Autistic Self Advocacy Network submitted the following
testimony to the NJ Department of Human Services, which had published draft
regulations in reference to the creation of an autism registry, at that
juncture mandated by legislation. Given that the registry’s creation had
already been established, our comments were oriented at ensuring that it
would be implemented in such a fashion as to respect the privacy rights of
autistic people and avoid unauthorized disclosure of information and
unethical research practices.
COMMENTS ON PROPOSED N.J. AUTISM REGISTRY REGULATIONS
CHANGES ARE NEEDED TO ADDRESS PRIVACY CONCERNS AND THE POTENTIAL FOR STIGMA AND MISLEADING DATA
The Division of Family Health Services has proposed new rules and amendments
at N.J.A.C. 8:20 to establish a birth defects registry, which would include
an autism registry and a severe neonatal jaundice registry. The Autistic
Self Advocacy Network has several concerns about the autism registry
proposal: (1) The use of the term “birth defects” is inaccurate and
stigmatizing as applied to autism; (2) Alternatives to the use of personally
identifying information should be implemented; (3) An opt-in, instead of opt
out, procedure for personally identifying information should be used; (4) A
civil cause of action for the revealing of personally identifying
information should be created; (5) Data obtained from the registry is likely
not to be comprehensive given the number of autistic individuals who are
undiagnosed; and (6) Written consent along informed consent guidelines
should be required for the use of registry information in research.
â–ª “Birth defects” ordinarily refers to conditions such as severe neonatal
jaundice that result from factors associated with pregnancy. Registries
track the occurrence of such conditions for the purpose of improving
prenatal and neonatal care. Autism, however, has not been shown to be
caused by events that occur during pregnancy. Rather, autism is a
developmental disability that reflects genetic differences. As such, the
term “birth defects” is inappropriate and has a significant potential to
stigmatize the autistic population by characterizing citizens on the autism
spectrum as defective. The Autistic Self Advocacy Network recommends that
the term “birth defects” not be used in connection with an autism registry
or any autism-related initiatives.
â–ª Alternatives* to the use of personally identifying information should be
carefully considered and should be implemented to the fullest extent
possible. As stated in the Recommendations on Confidentiality and Research
Data Protections adopted by the National Human Research Protections Advisory
Committee (http://www.hhs. gov/ohrp/ nhrpac/documents /nhrpac14. pdf<http://www.hhs. gov/ohrp/ nhrpac/documents /nhrpac14. pdf>),
“Protocols should be designed to minimize the need to collect identifiable
data by determining whether there is a legitimate reason to collect or
maintain identifiers. Data can often be collected anonymously, or the
identifiers can be removed and destroyed after various data have been
merged.” Moreover, where unique identifiers are needed for research
purposes, they can consist of unique codes, instead of personally
identifying information. The Autistic Self Advocacy Network recommends
that if an autism registry is created, alternatives to the use of personally
identifying information should be developed and offered.
â–ª Opt-in *is necessary to ensure the public’s understanding of the privacy
rights of citizens on the autism spectrum and their families. Individuals
on the spectrum and their families should be required to opt-in to offering
identifying information rather than be required to opt-out if they decide
they do not want to. The opt-out procedure currently proposed would not
necessarily result in informed decision-making by parents who might be
unaware that they had the right to opt out. Parents who have just received
an autism diagnosis for a child often feel overwhelmed by all of the
information that they receive concerning services and therapies, and a
notice about an opt-out process might be overlooked. The Autistic Self
Advocacy Network recommends that if an autism registry is created, an opt-in
procedure should be used for all personally identifying information. We
furthermore recommend that this is particularly vital if said registry is
extended to the autistic adult population.
â–ª A civil cause of action for unlawful disclosure of personally
identifying information would help to ensure that privacy rights would be
taken seriously by all involved. The existence of an autism registry, in
and of itself, creates a significant potential for stigma and discrimination
because most disabilities do not have mandatory reporting. State-mandated
collection of personally identifying information on citizens on the autism
spectrum suggests that autism is unlike other disabilities and could result
in a negative public perception of autism. Strong measures are necessary to
prevent potential harm. The Autistic Self Advocacy Network recommends that
if an autism registry is created, a civil cause of action for unlawful
disclosure of personally identifying information should also be created.
â–ª Incomplete data is likely because a significant number of children on
the autism spectrum do not receive a formal diagnosis. Some parents,
concerned about the possibility of stigma and discrimination, choose not to
seek a diagnosis. Other parents are simply unaware that their child has
autistic traits. Consequently, data obtained from an autism registry may
not be comprehensive and could give rise to misleading research results. The
Autistic Self Advocacy Network recommends that if an autism registry is
created, clear statements should be made indicating that the data may not be
comprehensive.
â–ª Written consent should be obtained in a manner similar to the informed
consent procedures that are required to be used in research studies. At the
time of diagnosis of a child, the parents could be given a consent form
about the registry, which they would need to read, understand, and sign
before any identifying data could be entered. The consent form would
explain what the data was, how it would be used, the choices that the
parents had regarding consent, the risks and benefits involved, the privacy
concerns, who had access to the data and under what circumstances, and how
to opt out at a later date. The Autistic Self Advocacy Network recommends
that if an autism registry is created, written consent along informed
consent guidelines should be required.
Compiled by ASAN Board Member Meg Evans. Direct questions to Ari Ne’eman of
The Autistic Self-Advocacy Network at
aneeman@autisticad vocacy.org<aneeman@autisticadv ocacy.org>.
Further information about The Autistic Self-Advocacy Network can be found at
http://www.autistic advocacy. org <http://www.autistic advocacy. org/>
—
Ari Ne’eman
President
The Autistic Self Advocacy Network
1660 L Street, NW, Suite 700
Washington, DC 20036
http://www.autistic advocacy. org
732.763.5530
First Published Wednesday, 4 March 2009

http://www.presscon nects.com/ apps/pbcs. dll/article? AID=200990303032 0
Broome Developmental Services (BDS) is planning to build a new group home
for eight children with autism in the Town of Union.
Southern Tier Independence Center strongly opposes this project. If instead
of spending over a million dollars to build a group home, plus hundreds of
thousands more for staffing, those funds were used to provide more
individual respite, supports in the child’s home, and behavioral
intervention services, many more families could keep their autistic children
in their own homes.
If there are children whose families cannot keep them, development of family
care homes with appropriate services for these children would be better
because, unlike group homes, family care provides a much warmer real-family
environment.
This project is part of a larger Office of Mental Retardation and
Developmental Disabilities pilot project to build four group homes for
autistic children around the state to conduct research and demonstrate new
techniques. But those techniques can be even better applied in children’s
natural homes or family care homes.
In recent years OMRDD Commissioner Diana Jones-Ritter has promoted a new
emphasis on community integration for people with disabilities in New York,
both in her work at OMRDD and as chairwoman of the state’s Most Integrated
Setting Coordinating Council (MISCC).
STIC was hopeful that with Ritter’s appointment of her MISCC point person,
Carl Letson, as director of Broome Developmental Services, that promised
direction would be followed locally. But Letson told me they would not
consider stopping the project, which has been in the works for more than a
year.
Group homes are far from the most integrated setting appropriate for
children with autism. Better options are available, and STIC is now gravely
concerned that the changes promised to people with developmental
disabilities in the Greater Binghamton Region and across the state won’t
happen.
Residents of group homes have told us that they are just small institutions
where they are unable to be independent or to truly take part in the
community. Letson says these homes are “community-based, ” but that isn’t
what people who live there think. Consumers don’t want group homes, so why
are they being built?
—
Ari Ne’eman
President
The Autistic Self Advocacy Network
1660 L Street, NW, Suite 700
Washington, DC 20036
http://www.autistic advocacy. org
732.763.5530
First Published Thursday, 5 March 2009

Pauline Anderson
Amsterdam, the Netherlands – Contrary to prevailing opinion, new research indicates it is not depression that raises blood pressure but the drugs used to treat depression-a finding that suggests patients on antidepressants might need to be more closely monitored.
Investigators at the VU University Medical Center, in Amsterdam, the Netherlands, show that depression is associated with low-not high-blood pressure but that taking certain antidepressants, particularly tricyclic antidepressants (TCAs), tends to raise blood pressure and increase the risk for hypertension.
“Doctors should at least be aware of a potential blood-pressure rise that could be linked to TCA use, especially for patients with cardiovascular disease or high blood pressure or others who are at risk for hypertension,” lead author Carmilla Licht (VU University Medical Center) said.
© 2009 Medscape Medical News
First Published Thursday, 5 March 2009

Library staff share some of their favourite books for World Book Day
- Date: Mar 4, 2009
World Book Day is the biggest annual celebration of books and reading in the UK and Ireland.
World Book Day, Thursday 5 March 2009
Library staff share some of their favourite books.
Jane Healey, Senior Librarian, Highgate
Elizabeth and her German Garden by Elizabeth von Arnim -The beauties of nature, social commentary and wry observations on life all mix in this witty and idiosyncratic semi-autobiographical diary.
The Greenlanders by Jane Smiley – If you ever wondered what life was like in medieval Greenland! … an entry into another world – this has lived on in my mind for years. Beautiful and enthralling.
Possession by A.S. Byatt – My favourite Booker winner – a lush interweaving of dual worlds as two contemporary scholars reconstruct an unsuspected love affair between two Victorian poets
The Charterhouse of Parma – by Stendahl – Possibly the greatest French novel ever. A romantic thriller set in the Napoleonic era it broke new ground with its realism and deep psychological insights. The description of the confusion of the battle of Waterloo greatly influenced Tolstoy.
Le Grand Meaulnes by Alain-Fournier – Romance with a capital R. Beautifully written, elegiac, mysterious and tragic. Read with a box of tissues to hand …unless you have a heart of stone!
Felicity Page, Principal Librarian, Children and Young People
The Moons of Jupiter by Alice Munro – This encapsulates so much of her superb craft in short story telling. Called the Proust of the twentieth century she writes of love, loss, happiness and misery of the human heart.
Austerlitz by W.G.Sebald – Intriguing and lyrical journey of discovery into Europe’s shameful past.
Memoirs of a Fox Hunting Man by George Sherwood. Thinly disguised fictional autobiography of Siegfried Sassoon, a brilliant diarest, poet and man of letters.
The Brothers Karamozov by Fyodor Dostoyevsky. This illuminating and epic tale of a family and their tragic history in nineteenth century Russia demonstrates so many of the fundamental questions of life, death, religion, sin and redemption.
Anna Karenina by Leopold Tolstoy. This tragic love story and the tragic demise from grace of the heedless and beautiful and Anna and her treacherous lover is gripping from the first line – ‘each happy family is happy in a similar way but each unhappy family is uniquely unhappy.’
Sue Jessop, Principal Librarian Learning and Reading
To Kill a Mockingbird by Harper Lee- Based on a true story, and set in 1930s Alabama, Atticus Finch is the small town lawyer who challenges the rigid social codes of the time by defending a black man charged with the rape of a white girl. Harper Lee’s only novel won the Pulitzer Prize.
The Great Gatsby by F Scott – Fitzgerald – Set in a heat wave in America during the roaring 20’s, Fitzgerald invites you to join the world of glittering parties and a society obsessed with wealth and status. But Gatsby’s pursuit of his secret obsession and the tragic unfolding of events reveal a society with a murky underside.- The Curious Incident of the Dog in the Night Time by Mark Haddon. A mystery story told by a 15-year-old boy with Asperger’s Syndrome, at ease with complex maths but completely unable to recognize human emotions. An unusual and sensitive combination of maths, humour, love and sadness.
The Big Sleep by Raymond Chandler . &amp;quot;I was neat, clean, shaved and sober, and I didn’t care who knew it. I was everything the well-dressed private detective ought to be.&amp;quot; Chandler’s first novel, introducing the tough, cynical, world-weary, wisecracking Philip Marlowe
Jude the Obscure by Thomas Hardy – Jude Fawley’s university aspirations are thwarted and his socially unacceptable love for the intellectual, free-spirited Sue Bridehead leads to truly shocking and unbearably tragic consequences. Created such a scandal when published Hardy never wrote another novel.
Sonia Winifred, Deputy Head of Camden Libraries
Forever Amber by Kathleen Windsor
Women of Brewster Place by Gloria Naylor
To Kill a Mockingbird by Harper Lee
The Reader by Bernhard Schlink
Cancer Ward by Alexander Solzhenitsyn
Nana by Emile Zola -
Love in the Time of Cholora by Gabriel Garcia Marquez
Pamela Butler, Senior Librarian, Kentish Town
What we talk about when we talk about love by Raymond Carver -American master of minimalist prose puts meaning into the lives of everyday people.
The women’s room by Marilyn French – A book which meant so much in the movement for womens liberation and which still packs a punch.
Hunger by Knut Hamsun – A flavour of what it feels like to be starving, cold and desperate on the icy streets of Norway.
The Gormenghast Trilogy by Mervyn Peake – A colourful fantasy of exquisite characters and goings on in a fairytale castle.
Finding a different kind of normal: misadventures with Asperger syndrome by Jeanette Purkis – Fascinating and frightening in equal measure as a young woman looks back on her roller coaster life up to her success and acceptance of living with the syndrome.
Diane Bowman, Senior Librarian, West Hampstead
Brokeback Mountain by Annie Proulx – True love is found in the most unexpected places.
Fingersmith by Sarah Waters – This novel had me in its grip from the first page, a thrilling dip into the sordid under life of Victorian London.
Gone with the wind by Margaret Mitchell – Ten years in the writing, a heart breaking story of love and loss, a nation mortally divided. Margaret Mitchell’s only published work.
Bleak House by Charles Dickens – A savage, but often comic indictment of a society that is rotten to the core. The case of Jarndyce and Jarndyce rumbles on and on.
Grapes of Wrath by John Steinbeck – The most beautifully written book I have ever picked up. A poetic tribute to the endurance and dignity of the human spirit.
Kidnapped by R.L Stevenson – I just love dashing heroes and you don’t get more dashing than Alan Breck. Romance in the Scottish Highlands.
Gloria Keys, Group Manager St. Pancras
Secret History by Donna Tartt – Eerie and atmospheric with wonderful descriptions of New England in all its changing seasons.
A Short Walk in the Hindu Kush by Eric Newby – Wonderful and very funny account of a complete non- walkers plan to walk to Afghanistan – a great travel book and fascinating picture of what Iran and Afghanistan used to be like.
From the Holy Mountain by William Dalrymple – Another travel book following in the footsteps of a sixth century monk from Mount Athos in Greece across Turkey, Lebanon, Syria and Egypt, tracing the Middle Eastern roots of Christianity.
The Kindness of Strangers by Kate Adie – Kate Adie’s autobiography starting with the sometimes hilarious memories of her early years at the BBC and her travels around the world as a foreign correspondent.
Lake Wobegone Days by Garrison Keillor – Read this after listening to GK read it on the radio! An account of growing up in the fifties in a small town in Minnesota. As Keillor grew up and embarked on the treacherous dating game, he had to cope with taking his date out in a car covered in verses from the Bible picked out in red reflective beading!
Nick West Senior Librarian, Holborn
Of Love and Hunger by Julian McClaren-Ross -The uncertain life of vacuum cleaner salesmen on the south coast in the immediate pre-war years.
1974/1977/1980 by David Peace – First three parts of the Red Riding quartet. Murderous doings in the West Riding against a backdrop of the Ripper killings.
The Dumas Club by Arturo Perez-Reverte -Occult mystery set in the antiquarian book trade. Filmed by Polanski as ‘The Ninth Gate.’
The Separation by Christopher Priest- Alternative history of the Second World War.
Our Mutual Friend by Charles Dickens – Love and greed on the Kings Cross dust heaps and the Thames
Mother London by Michael Moorcock – Chronicles of London across the decades – 1930s to 1980s. Theobalds Road and Brooke Market and Holborn Viaduct feature prominently.
The Psalm Killer by Chris Petit -Northern Ireland serial-killer investigation sheds light on the darker recesses of the Troubles
Misfortune by Wesley Stace -Like a ballad bought to life. Victorian picaresque. Sarah Waters meets Jeffrey Eugenides.
Sally Davies, Senior Librarian, Swiss Cottage
Perfume by Patrick Suskind – Weirdly fascinating, compellingly gruesome story of obsession in pursuit of perfection.
A Secret History by Donna Tartt – A modern day Greek tragedy, a Dionysian cult in a New England college goes horribly wrong.
Hawksmoor by Peter Ackroyd – A dark tale of evil deeds by a real life eighteenth century architect, it’ll make you want to explore his churches in London.
The Plague by Albert Camus – That second most famous French existentialist footballer after Cantona muses on morality using the backdrop of the last outbreak of bubonic plague in North Africa.
Metamorphosis by Franz Kafka – A typical story of a man turning into an insect. Full of angst ridden horror and self revulsion.
The Idiot by Fyodor Dostoyevksy – A young man of pure innocence and frail health falls in love and falls prey to the ruthless power hungry characters who cross his path and seek to manipulate his life.
Roma Greliak, Senior Librarian, Swiss Cottage
The Leopard by Tomasi di Lampedusa –A 19th century Sicilian aristocratic family play out love and war in the searing landscape of Sicily pre and post the fateful landing of Grariboldi.
Family Matters by Rohinton Mistry – A tender story of family relationships. Wonderful dialogue, humour, warmth and sensitivity.
Love in the time of Cholera by Gabriel Garcia Marquez – magical realism and epic story lines, a novel about love.
Suitable Boy by Vikram Seth – An epic about love and marriage in post independent India.
Middlemarch by George Elliot – complex novel of early Victorian provincial life, charting the social and political movements of the time and how they shaped the destinies of ‘ordinary’ people.
Lesley Halliday, Senior Librarian
44 Scotland Street by Alexander McCall Smith – This book started life in weekly installments on the pages of The Scotsman. If you enjoy reading it, the very good news is that it is only the first of Alexander McCall Smith’s Scotland Street series. The occupants of 44 Scotland Street in one of Edinburgh’s more desirable residential areas are a fascinating bunch. A particular favourite of mine is Bertie who at the age of five can speak Italian and play the saxophone well. However, all is not well -he is in therapy after setting his father’s Guardian on fire…
The Natural Flights of the Human Mind by Clare Morrall – A recent Christmas present, much enjoyed. The two main characters have been so damaged by their life experiences they can barely function. One has withdrawn completely from society. A well timed bequest that one receives brings happiness for them both.
The Keeper of the Bees by Gene Stratton Porter – This old book was recommended by a friend in her nineties and it is both dated and charming with a dash of adventure thrown in. The Keeper of the Bees gives the reader a fictional insight into life in California post-First World War -and most definitely pre-Roaring Twenties!
Case Histories by Kate Atkinson- A bit of a departure for Kate Atkinson. I really enjoyed this who-dunnit with a difference. I was delighted when she continued the story of two of the characters in One Good Turn (I think I enjoyed this second book even more than Case Histories – but best to start at the beginning!)
Affinity by Sarah Waters – One of Sarah Waters’ lesser known books. It is more compact than Tipping the Velvet, Fingersmith or The Night Watch –but it is perfectly developed. Her use of language and description is marvellous. Like Fingersmith, the book is set in Victorian London and in both books the plotline twists. I think the end will come as a surprise for most people.
Saint Maybe by Anne Tyler -I could have recommended any of Anne Tyler’s books with confidence but this is a particular favourite of mine. If you can’t find it on the shelves borrow another of Anne Tyler’s!
Steve Lack, Head of Camden Information Services
English journey by JB Priestley – Life, high and low, goes on during the Great Depression. Priestley brings provincial towns and cities to life with portraits of theatres, fairs, pubs, people.
Adolf Hitler, my part in his downfall by Spike Milligan – Comic writing was never the same again, Milligan makes you fall over laughing at tales of army life in the early days of WW2
Knulp by Hermann Hesse – Find out why proud vagrant Knulp wanders around the idyllic countryside of Southern Germany in the early 1900s.
Tinker Tailor Soldier Spy by John Le Carre – Smiley gets his man – or does he? Don’t worry about the plot, just enjoy the writing and the characters.
Under the Greenwood tree by Thomas Hardy -The light and fluffy romance of Dick Dewy and Fancy Day fizzes along whilst the wicked Reverend Maybury tries to replace the church band with a mechanised organ. Happy ending? Don’t bank on it with Hardy.
Goodbye to Berlin by Christopher Isherwood – seen Cabaret, now read the book if you want to be topical.
Gordon Keys, Principal Librarian, Bibliographic Services
Barchester Towers by Anthony Trollope – Trollope’s wonderful comic description of ecclesiastical jealousies and ambitions – introducing two of the most notorious characters in Victorian fiction, Mrs. Proudie and Mr. Slope.
Roman Blood by Steven Saylor– the first in the brilliant Roman detective series. Gordianus the Finder solves real historical crimes during the times of Cicero and Julius Caesar.
2 ½ pillars of wisdom by Alexander McCall Smith – A comic trilogy by the author of “The No. 1 Ladies Detective Agencyâ€. The vain, pompous Professor von Ingelfield has been described as a cross between Frasier Crane and Victor Meldrew.
Grapes of Wrath by John Steinbeck – set in America during the Depression years, the Joad family are forced to migrate to California with all their possessions where they and thousands of others endure hardship and poverty and are at the mercy of unscrupulous employers. You would have to possess a heart of stone to fail to be moved by this magnificent novel.
Chronicles by Bob Dylan – there are so many biographies of Dylan but he always surprises us with this autobiography unlike any other – is he being truthful? Maybe, maybe not it’s just such a joy to read.
Stella Richards, Manager, Children, Young People and Schools Library Service
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The Kite Runner by Khalid Hosseini – A gripping story of boyhood friendship destroyed by and fear. It moved me to tears. I had no idea of what life was like in the Afghanistan in the 1970s.
The Map of Love by Ahdef Soueif – Beautiful writing. A romantic love story along with Egypt’s history, past and present.
Bird Song by Sebastian Faulks – Largely set on the western front in the First World War it tells the harrowing story men who lived in barely imaginable conditions and a clandestine love affair. A wonderful read.
Perfume: the story of a killer by Patrick Suskind -It is the story of a survivor, genius, perfumer, killer. Beautiful and horrific; the essence of the book stays with you for a long time.
Nights at the Circus by Angela Carter -Baroque fairy tale at the turn of the 19th century world. Magical realism at its best.
Nick Durant, Community Learning and Development Librarian
Huckleberry Finn by Mark Twain. – It was a very subversive book in its time, and it still is: the “good†widow who is a church-goer and tries to educate and ‘sivilise’ Huck, is also a slave-owner; and the turning point is when Huck decides that he’s going to be “bad†after all: he’ll help Jim – the runaway slave – escape to freedom. This is the only book which I read as a child (and not at school) which I still read as an adult.
Tartuffe by Moliere (in the brilliant translation by Richard Wilbur). – Again, a subversive work. A play about how a conman, by pretending to be very religious, almost takes over a family. The ending, when a messenger from the King (Louis XIV) reveals that the King has understood the depths of Tartuffe’s wickedness and will put everything to rights, always makes the audience laugh – and Moliere meant it to.
The Master and Margarita, by Mikhail Bulgakov. – The devil visits to Moscow, with his assistants (including a talking cat). One of the funniest books I’ve ever read: e.g. the theatre performance, during which Koroviev the Cat pulls off someone’s head, and then sticks it back on! Bulgakov wrote this at the height of the Stalin era, and though it never refers to Stalin, gives some idea of the terrifying craziness of those times.
Silence Among the Weapons, by John Arden. A vivid and authentic historical novel about politics and the theatre: in the first century BC a small troupe of actors tour Italy, as the Roman republic descends into chaos and civil war.
Suite Francaise by Irene Nemirovsky. – A novel about France’s defeat and occupation by the Germans in the second world war. Written from the midst of the events, it was never finished, because the author was arrested and sent to Auschwitz. Only two-fifths of the book was completed, but it is magnificent. First we follow a number of different characters as they flee from Paris, after the collapse of the French army; then, once France is under occupation, we read how a Frenchwoman whose husband is a prisoner of war falls in love with a German officer billeted at her house. Clear-eyed, but compassion. An amazing book.

Where can I get these books?
All these books are in stock in Camden Libraries or can be reserved free of charge
First Published Thursday, 5 March 2009

Switching off a protein causes the brakes to fail in our natural ability to respond to stress
Chronic stress takes a physical and emotional toll on our bodies and scientists are working on piecing together a medical puzzle to understand how we respond to stress at the cellular level in the brain. Being able to quickly and successfully respond to stress is essential for survival.
Using a rat model, Jaideep Bains, PhD, a University of Calgary scientist and his team of researchers at the Hotchkiss Brain Institute have discovered that neurons in the hypothalamus, the brain’s command center for stress responses, interpret ‘off’ chemical signals as ‘on’ chemical signals when stress is perceived. “It’s as if the brakes in your car are now acting to speed up the vehicle, rather than slow it down.” says Bains. This unexpected finding is published in Nature Neuroscience.
Normally, neurons receive different chemical signals that tell them to either switch on or switch off. The off signal or brake only works if the levels of chloride ion in the cells are maintained at a low level. This is accomplished by the transporter protein KCC2. What Bains and colleagues have shown is that stress turns down the activity of KCC2, thus removing the ability of the brake, a chemical known as GABA, to work properly. A loss of the brain’s ability to slow down may explain some of the harmful, emotional consequences of stress.
While the findings provide a new mechanistic explanation of how the brain interprets stress signals, “there is still much work needed in the basic science of this phenomenon before there are any new advances in the medical treatment of stress,” says Bains.
“This opens entirely new and quite unexpected avenues for controlling stress responses,” says Yves De Koninck, PhD, president-elect of the Canadian Association for Neuroscience and professor of Psychiatry at Laval University.
“I was fascinated when I learned of this work. It has not been clear till now how the neuroendocrine stress response was activated by external stressors. Bains’ work shows a complex, yet elegant solution, involving a switch from inhibition to excitation.” says Jane Stewart, PhD a behavioral neuroscientist from Concordia University, “these findings may lead to a better understanding of the changes in sensitivity to stress that result from chronic exposure.“
The research was supported by the Canadian Institutes of Health Research.
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Hewitt SA, Wamsteeker JI, Kurz EU, Bains JS. Altered chloride homeostasis removes synaptic inhibitory constraint of the stress axis. Nat Neurosci. 2009 Mar 1; doi:10.1038/nn.2274 Â [Abstract]

